Marfan Syndrome

Marfan Syndrome Discharge Instructions

Marfan syndrome is a disorder of the connective tissue of the body. Connective tissue helps to hold the body together. Marfan syndrome can affect the connective tissue any place on the body. You may have problems with your bones, eyes, heart, blood vessels, nerves, skin, and lungs. It does not affect your intelligence. Marfan syndrome is a problem that you are born with. You may not know that you have it until later in life. There is no cure for this disorder. The aim of treatment is to control the problems that may happen.

Help with pain and swelling,Treat heart problems,Treat eyesight problems,Treat breathing problems

Eyesight problems,Scoliosis,Back pain,Leaky heart valves,Enlarged heart,Heart failure,Aortic dilation or dissection,Lung problems,Infection of the lining around the heart. This is bacterial endocarditis.,Pregnancy problems

Signs of heart attack: Chest pain Trouble breathing Fast heartbeat Feeling dizzy,Chest pain,Trouble breathing,Fast heartbeat,Feeling dizzy,Sudden pain in your belly or pain in your belly that does not go away,Sudden eyesight problems,Weakness or numbness in the arms or legs,You are not feeling better in 2 or 3 days or you are feeling worse

Neuromuscular and Skeletal

Ectopia Lentis,Emerging Marfan Syndrome,Marfan's Syndrome,Marfans Syndrome,MFS

This information is not specific medical advice and does not replace information you receive from your health care provider. This is only a brief summary of general information. It does NOT include all information about conditions, illnesses, injuries, tests, procedures, treatments, therapies, discharge instructions or life-style choices that may apply to you. You must talk with your health care provider for complete information about your health and treatment options. This information should not be used to decide whether or not to accept your health care provider’s advice, instructions or recommendations. Only your health care provider has the knowledge and training to provide advice that is right for you.

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